Road to Recovery

Whew. The last few days have been intense! Now that he has been moved out to the floor, no more heavy duty pain meds, and mainly off the IV - he is nothing short of high maintenance! Isaac was moved out to the floor on Sunday afternoon, and started out wonderfully. He ate well, and drank about as well as Isaac drinks. His output however, waned considerably. Which brought us to Tuesday night. His stomach was so incredibly distended, we were all in pain on his behalf. He required quite a bit of intervention to get some relief, and we are still working on that. Last night, Dr. S ordered an indepth xray, which showed a large amount of stool in his bowel. He's had some treatments for relief, but unfortunately while he has been able to rid himself of some of the stool, his poor tummy continues to swell.  Isaac has had multiple xrays to try and solve this bowel issue.  We will continue to monitor it closely but it is heartbreaking as you can tell he is in obvious pain.

He has done an AMAZING trick - proving that the sensory pathway to his legs is intact. He still cannot move his legs or his feet, so we still are praying that in the days to come he will show some improvement in the motor pathway but for now we are encouraged by his sensation but obviously concerned about the lack of motor ability.  One of the offshoots of this problem is without the ability to feel his legs, he has considerable problems sitting up.  This means it is difficult for him to be active, which in turn would help his legs.  Ultimately this just means he is kind of in a catch 22.

So, to kind of recap, we are now on day 10 in the hospital, the surgery was successful on most fronts, but terribly concerning is the loss of motor skills in his legs and the increasing problems with his bowels, a problem that should have been dissappating by this point, not increasing.  The original plan was to go home on Monday, though we actually were hoping for Sunday night.  With the GI concerns, that discharge date is certainly up in the air.  We can only hope this little guys insides start working properly.

Thank you again for all the support.  When we know more we will do another blog post, sorry for the delay on this one!