Continued Progress

Let me first start by saying that we continue to be thankful for the care and expertise that we have received. We have been blessed by truly wonderful medical team that we wouldn't trade for the world.

Isaac continues to make progress, and is moving his arms with much precision (read: sucking his thumb and trying to keep his nurses from messing with his IV). The doctors continue to be cautiously optimistic about movement in his legs. He responds to being pinched and poked, but still has not moved them spontaneously on his own. Because of the reactions we have seen, we know that the pathway from his legs to brain are there, which is where the cautious optimism comes into play. If he has those pathways, it is very hopeful that his ability prior to surgery will return. This is where our biggest prayer request is at this point - that wee continue to see marked improvement in his legs. He also needs to continue to eat well and drink so that we keep everyone else happy with his diet too :).

To help facilitate the best and quickest recovery possible, Isaac is still in the PICU. They are able to keep a very close eye on his blood pressure by keeping his arterial line in. They are trying to keep his Mean Arterial Number (MAP, or the bottom number of your blood pressure number) right around 70. The reasoning to keep it elevated is that this will help keep his spinal cord well perfused, which will give it blood flow that it needs to help these neuro connections work. He can't go out to a regular room as long as he still has his ART line, so we will stay in the PICU as long as we need to.

As for Eli, he is doing well. He has had a couple of play dates this past week thanks to our nanny, Jaime; and has made a road trip with his grandparents to go see his cousins. He got to have a slumber party in his room with Pops too! Tonight he is hanging out with Ryan... I think they're headed out to Sporting KC for his first soccer game! I bet he can't wait!

Thanks to all of our friends and families for all of the support you have given us. We can't thank you enough for all of the meals, prayers, thoughts, calls and texts. They mean so much to us!

Hugs from us!