Sunday, June 20, 2010

Happy Fathers Day!

Isaac, Eli and I want to wish Ryan a very Happy Fathers day! Ryan is such a great daddy, and takes great care of the boys and I. From changing dirty diapers to feeding hungry babies to making sure we all are getting a good amount of rest, Ryan looks after us and makes us a great family.

Even when we were in the hospital (and even before the boys were born - when I was on bedrest), if there was something wrong, if one of us needed something, or we needed to be advocated for, Ryan was quick to be on his way to talk to a nurse or whomever he needed to make sure whatever it was, was taken care of. And if it required asking again, he didn't hesitate.

Each morning, he has been spending time teaching the boys about soccer. He's had so much fun sharing the World Cup games with the boys. I am excited to watch Isaac and Eli grow, and learn about soccer, golf, and lots of other sports from their dad.


Excited to get to meet his boys! 


From the first days in the hospital...


...to getting to bring us home...


...and relaxing with us at home - you're always here to take good care of us!

WE LOVE YOU DADDY! 

Isaac, Elias & Kristi

Saturday, June 19, 2010

Under Construction... (and hopefully no roadblocks!)

We've had LOTS of appointments this week! They started on Tuesday morning, with the Orthopedist for Isaac. To be honest, we thought we were going to get a game plan on how to proceed with Isaac's club foot. And that is exactly what we did... and then started our plan! Dr. S told us that the way we are going to correct Isaac's foot is by serial casting, and then a brace. To break that down, Isaac got a cast on his leg on Tuesday, and for the next 4 or 5 Tuesdays, we'll trek back to CMH, where Dr. S will take off Isaac's cast, and then reposition his foot and recast it. When we are done with the casting in 5 weeks, little man will get a brace that he will wear 24/7 for 3 months. After his 3 months are up with it, then he will wear it at night until he is 3 years old. I'll post a picture later. He's pretty darn cute with the cast too!

We were supposed to have an appointment with Physical Therapy for Isaac after the Orthopedist, but there wasn't much they could do with his foot while its in a cast, so we were on our way from there.

The other task we wanted to complete while at CMH was to get Eli fitted for his actual carseat. He came home in a car bed because he is so tiny, but he was over 4 and half pounds, and getting to tall for the carbed. We wanted someone to look at him in his carseat and make sure that it fit him properly so we could be sure that the positioning wasn't affecting his airway, and that he is safe in it. Sounds easy, eh? We had tried calling the carseat nurses since Friday of the previous week, with no return calls. So we headed up to the NICU to see if our friendly front desk ladies could try to page them. Again, no answer. So we went over to find their office, which was like a mile walk itself, and posted on the door is that their office hours are from 10am - 4pm by appointment only. Explain to me how I can get an appointment, if no one answers the phone or returns calls!?!  So we took Eli back home in his carbed.

In the afternoon, we had a surgery consult with a different Dr. S for Isaac's right inguinal hernia. If you remember, they had told us while the boys were inpatients there that they'd like to wait until he's 6 months old, as the anesthesia risk goes down at that point. So that was all the basis we had to go on for that, until the appointment. Dr. S seems to think that with some of the complications that Isaac is having and the size of the defect, that we need to do surgery sooner rather than later. He suggested next week. Of course, nothing is that easy, as when the scheduling nurse called, she said his next available time to do the surgery isn't until August 4th. Ummm, we're under the impression that it is a bit more urgent than that, so we conveyed that to her. Of course, Dr. S is out of town until Monday, so we're still waiting to hear a confirmed date for Isaac's hernia surgery.

And, if those appointments weren't enough, we had Pediatrician appointments for both of the boys on Friday. Yet with a different Dr. S! Isaac weighed in at 6lbs 7oz (with his cast) and Elias at.... drumroll please...... 5lbs 1oz! I think that Eli is really proving that there was just a problem with how his placenta and umbilical cord formed and provided him with nutrition, rather than there being a problem with him and how he grows. He continues to amaze us with every weigh in. We'll continue to watch Isaac, as he isn't gaining as fast as we'd like, but also with his Spondylocostal Dysostosis (SD), he won't grow longer as quickly as a 'normal' baby would, thus his weight gain may be less.

To celebrate the week, and part of Fathers Day, Daddy got a new grill, and we had lots of family over on Friday night to grill out. Great-Grandma and Great-Grandpa Krehbiel brought over some ribeyes, and Great-Grandma fried up some squash. Mmmmm. We also had some homemade ice cream, pie, cake, salad, and the list goes on! Grandma Laine, Great Aunts Lisa & Lynne, and Carrie and Erica were also here with us. We're looking forward to Pops/Grandpa Tim to make his way up here tomorrow for Fathers Day!

We hope everyone has a great weekend, and Fathers Day.

Hugs-

Tuesday, June 15, 2010

Happy One Month Birthday, Boys!

Isaac and Elias,

You have made it one month into what we hope and pray will be long and successful lives.  It is amazing to think that one month ago we were being told that one of you might not survive (that's you Isaac, and I will let you color those gray hairs you gave me at a later date).  You have come home in under one month at the hospital (after being told you most likely would be there 50 days minimum).  You have overcome breathing difficulties, heart defects, spine defects, growth restrictions, and numerous other small ailments and you are thriving.

We've been enjoying your little personalities at home (99% of the time!). Isaac, you seem to know what you want, and that you wanted it 5 minutes ago. We love looking into your big eyes, and wondering how you will see the world through them. You seem to take after your mom, at being a night owl... staying up for hours in the middle of the night, just thinking and wanting to hang out. We've told you lots of stories, and you've been quite the captive audience (but then, did you really have a choice?). You like to sleep in bits and pieces, with the occasional 2-3 hour stretch, but those are few and far between! You have increased the amount that you eat, and have increased your weight up to 5lbs 12oz (as of 6.10.2010), proving that you are continuing to thrive.

Elias you also have incredible eyes. When you are awake, you appear to be looking at what the world (or our house) has to offer. We're excited to hear someday what all you've been thinking of and plotting! There seems to be quite a bit of deep thinking and concentration going on in your little head. You're a good little sleeper (usually), and a good eater. This is evidenced by your average weight gain of an ounce a day. As of this past Thursday (6.10.2010), you weighed in at a whopping 4lbs, 7oz. You've gained nearly a pound and a half since you're lowest weight (3lbs, 0.08oz).

You have made your mom and I work just a little harder.  But we wouldn't trade you guys for the world. You're such little miracles and answers to many prayers.  We can't wait to see what the next month brings.

We love you.

Daddy & Mommy

 

Saturday, June 12, 2010

Some pictures of what we've been up to at home...


After our first baths at home - Isaac & Eli
6.6.10


Great Aunt Darleen came to meet us! 
6.6.10


Emily came all of the way from Kentucky to meet us! (Okay, so she was in town for a conference, but we told the boys it was just for them!) So good to see you! 
6.4.10


Elly likes to watch over us, and thinks we're pretty swell. 
6.7.10


Daddy enjoying the fresh air & feeding Eli. 
Elly wants to know where her bottle is??? Hmmm...
6.10.10


Aunt Roxy & Uncle John  6.12.10


We've had several other visitors too, but sometimes I don't always remember to get out the camera!


Friday, June 11, 2010

Sweet Home Alab..err Lee's Summit


So I know we haven't really posted an update in quite awhile. The reason? Well, it's been a bit busy at home. We have figured out the following things about having the boys at home:

1. Bottles require being washed twice a day. That is how many we go through (14-16 a day between the two boys). That's alot of washin.
2. Rooms miraculously turn into "storage areas". For example, our dining room is now a "storage area". Why? Cause we aren't using it, don't plan on using it anytime soon, and don't often wander in there. Out of sight=out of mind. Sweet.
3. A crying baby can wait...but not for long...or the other one starts crying. But here is what I can't figure out. They can wake each other up by crying but they each can sleep through vacuum cleaners, the dog barking and other, much louder noises. Weird.
4. My portable DVD player has become very valuable in the middle of night.
5. Isaac is awake probably 12-14 hours a day. This seems to be out of the norm. He doesn't seem to mind though. Only our sleep patterns seem to mind.
6. Eli is very laid back so far. Smiles quite a bit, and generally is a friendly little guy. Isaac is friendly, but can be much crankier (and faster) and generally requires just a bit more TLC.
7. Everyone kept talking about how hard this would be. It isn't hard. It is tiring, it is exhausting, it can be frustrating, but it isn't hard. IT IS REWARDING. Even though I think I wish I could sleep more, I wouldn't trade the smile at 2:15 in the morning I got from Eli couple of nights ago or sitting with Isaac for almost 4 hours last night. He wasn't cranky, just wanted to see the world, and I am glad I was there to share it with him.
8. Ok, we are tired!
9. Having visitors every now and again makes you feel like you are a real human again!
10. The new weights!! Isaac is 5 lbs 12 oz and Elias is 4 lbs 7 oz


Pics of our time at home coming tomorrow or Sunday. See ya!


Monday, June 7, 2010

Our last couple of days at CMH, and our Journey Home!

The last couple of days at CMH (June 1st & 2nd) were quite eventful. The boys had hearing tests, each got a shot, car seat tests, and the list goes on. We'll share a few of the pictures from their adventures!


Eli's bedspace at Children's Mercy

Elias - sleeping through his carseat test (note, he was too tiny for his carseat, so here he is in the 'car bed' that they sent him home in! (June 1)

Isaac's bedspace at Children's Mercy

Isaac - sleeping through his carseat test (June 1)... I think we might have to teach these boys that in the future, they won't be allowed to sleep through tests! 

We didn't take pictures of them getting their shots, or their hearing tests - we thought that wouldn't be very nice!

Before we were able to bring them home, we stayed the night with them on Tuesday night in what they call a 'Parent Care Unit' or PCU.  The PCU is essentially a hospital room that has a full sized bed, and room for the crib(s). There's a TV (although ancient), and a bathroom. They say it's kind of like a hotel room, but I'd have to argue that the last hotel room we stayed in had a king sized bed and a down comforter! I digress... anyway, I don't think there was much hope for us to get any sleep anyway! The reason for staying in the PCU is to ensure that the parents are able and feel comfortable taking care of their kids before they bring them home. Here are a few pictures from our time in the PCU:


Door to our room

The cribs inside of our PCU

Hanging out! 


Isaac getting his wagon ride! (Eli didn't get one... he had to be carried because he was so tiny!) - June 2


Eli getting into his carbed (June 2)


Ryan getting Isaac in the car! (June 2)

...And then we were on our way home! As Ryan was driving in the parking garage, he made the comment that he didn't feel that he should drive any faster than that going home (which was about 5mph). Upon further calculation, and realizing it would take us about 3 and a half hours to get home at that rate, he decided he would just drive the speed limit, very carefully! We then made it about half a mile, and I thought Eli was making funny noises, so Ryan pulled over the car so we could check on him. All was well. I am sure the boys were wondering when we would ever make it home at this rate! After that, we made it all of the way home, and have been trying to get some sleep ever since! 



Thursday, June 3, 2010

The Power of Prayer

Isaac and Elias Murdock would like to say something to all of their family, friends, and followers.

WE ARE HOME!  THAT'S RIGHT, WE CAME HOME TOGETHER AT 3P.M. ON JUNE 2ND.  OUR FIRST FULL DAY AT HOME WILL BE OUR PARENTS ANNIVERSARY.  WE PLANNED IT THAT WAY.


They boys would like to say thank you to everyone.  Each one still has some hurdles to overcome and we have dozens of follow up appointments on the books.  But for now, we are a family of four in our own home.

We will be posting some pics of our time at CMH and our trip home here shortly.  Again, thank you everyone, we still have a long road to travel (especially with Isaac) but it is nice to be together.