It's the stay that never ends... it goes on and on my friends...

So, Isaac is on day 7 of his stay at CMH. He's still in pretty good spirits, and we try to keep him busy with activities (walks, coloring, painting, etc). And, when all else fails, and episode of Mickey Mouse Clubhouse.

What we do know:
- Isaac had an infection in his blood (Staph A) that has been controlled by IV antibiotics, and has now been switched to oral meds.
- Isaac is continuing to run fevers, of which we cannot come up with an obvious cause.

So, those pesky fevers - why are we having to stay? Many people are interested in what's the big deal if we're on antibiotics and are on the perceived right track. Here's the deal:

1. Staph A lives on 30% of the populations' skin. He was at an increased risk for this since he has had an infection previously w/ the same bacteria.

2. We've drawn blood/fluid from around the incision site for his rod lengthening, but those are coming back negative for any infection. This could be because he's already been on antibiotics OR because there really is no infection/abscess there. The main issue now, is that if there is a deep seeded infection,and we are discharged, then there is a possibility that if there is a small abscess there, that it could spread to the hardware, and then Isaac would be up a serious creek. At that point. we'd have to take out the hardware for a significant period of time, and he does not have enough stability to not have the hardware in. So, this is the crux of why it is imperative we find out the cause of the infection and treat it.


Isaac has had cards made by his classmates, pictures sent to him, and visits from friends & family. He wouldn't be in such good spirits w/o your holiday cheer. Please keep them coming!

Love -