The last two days have been pretty quiet overall. There have been some fun times, like when daddy decided he needed to enter and exit the room thru the laundry door. There is a half height door, that leads into a tiny vestibule that also has a bag in it for dirty linens, and then a door out into the hall from there. I would only assume this is so that laundry can be collected without bothering the patient and family. (So, why don't we also have trash chutes?) :) Since Ryan's debut trip thru the mini door, many more have followed. Mommy, Gigi, Aunt Lisa, Grandpa, Eli, and I think the list will continue to grow.
We've had a couple of setbacks - and they follow us anytime Isaac has anesthesia. So I guess I lied. I am going to talk about poop. Isaac always gets VERY stacked up (as someone I know would call it!), and we have a heck of a time getting him to go again. In our current situation, we do not have the luxury of time on our hands to let things begin to happen naturally. This is because it historically takes him about 5-6 days to get back on track, and during this stay, he's going back under anesthesia repeatedly within a week period. The other night he looked like the poor kid was going to pop. Our nurse suggested another dose of Miralax. We opted for an enema. We know our kid. He would have required just about a whole bottle of Miralax to get things going before the next surgery! Trust me, things got going, and he had instantaneous relief. He went ahead and ate dinner, which, with Isaac's history is very important that we keep him on track eating. Staying on top of discomfort and pain is very integral to him eating enough.
Today has been one of the tougher days for me. Watching Isaac ask, "Mommy, they not going to touch me?" when nurses and doctors come into the room. Hearing him scream when he sees the syringe that has the sterile water to flush his IV. I think that either seeing the person from Labs come into his room, or seeing the syringe of sterile water are a toss up as to which one causes him the most anxiety. It's hard to hear your child ask you to protect them, and not let "them give me an owie" - when you know the owie is what is going to help your child the most. My mind races to think - what is he going to remember? Is he going to think that mommy and daddy 'let' this happen to him? That we had a choice? Don't get me wrong - there have been great parts to the day, we got to spend lots of quality time and outside of the medical intervention, it was a pretty good day. It's just those parts that will help him the most, suck the most. I truly believe that God is in control, and he knows the bigger picture. Today is just one of those days I am having a really hard time seeing it.
Dr. S and "Buddy" (a resident that Isaac affectionately refers to as Buddy) - just stopped by. He is out of surgery and is doing well. :) - That makes our hearts happy. We'll post another update with details in a bit.
Love and Hugs-
"I truly believe that God is in control, and he knows the bigger picture. Today is just one of those days I am having a really hard time seeing it." --Thank God for honest, faithful lives, even when it's hard.
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